Khyati is a sweet little 6 month-old girl who has been diagnosed with Spinal Muscular Atrophy Type 1 – a disease that affects kids and claims 95% of them before they turn 2 years of age.When Khyati was born her parents, Raman and Joshna, had tears of joy in their eyes. Childbirth is one of the most beautiful feelings of life. The bond children have with their parents is inexplicable. The doctors cut the umbilical cord of the child but the connection with the mother lasts for a lifetime.After Khyati turned 6 months of age, her parents couldn’t help but notice that she didn’t have any neck control and was not able to sit up on her own. They took her to the pediatrician who suggested waiting one more month to see if there were any improvements. However, when nothing changed even then, they were suggested to do some diagnostic tests. The doctor’s words when he announced the results to them still ring in their ears and haunt their lives.Khyati was suffering from a very very deadly and dangerous disease – SMA. In this, the gene responsible for the entire muscle function of the body is missing or severely defective. So the child keeps losing out on muscle functions until they eventually lose their life.Their hopes rose when they were told that not all was lost but it crashed even deeper when they were told that she will need the world’s most expensive drug.2.1 million USD is the ray of hope for Khyati, is something that a middle-class family can’t afford alone. Team Ashvattha donated Rs.35,000 to help with Khyati’s treatment.
We hope Khyati recovers soon to live a happy life with her family. Thank you donors and volunteers for your help!